Tag: rheumatologist

Just an update

It’s been a bit since I posted anything here. While this is not uncommon I thought I would explain why there hasn’t been much from me and why that will continue for a bit yet.

First thing is that I am moving. I can’t afford to live where I do anymore and my Mom is letting me stay with her till I find a place I can afford. I’ll be moving August 26th-September 2nd. Everything should be done Between August 27th-29th however. Someone owes me and they will pay it off by moving the big things.

Second thing is I was on new meds. About 6 months ago I started on Orencia via IV. After the first dose I got the flu really bad. It took about 4 months after that for me to get to the point where I didn’t cough, etc. I even had to have my inhalers which I hadn’t needed in 6 years. I went to see my rheumatologist 2 weeks ago and he put me on some other meds to help with pain until he got my inflammation rates. I hardly remember those 5 days I was on it. Everything was a dream. I forgot what I actually did & thought I had done things I hadn’t. I stopped it about 4 days ago & I am still so tired but at least I remember what I have done and not done.

Third things is that I am totally and utterly single. No more hanging on to a relationship that wasn’t working but I tried to make work anyhow. I am too old for that anymore.

I haven’t been designing for about a month now. I have 2 patterns out testing & 3 ready to be tested. I don’t know when I will have anything published except the 1 pattern I plan on publishing in September. I hope to get settled enough at my Moms for me to get back to designing and publishing my patterns. I am also working on putting a book together for the Mish Mash Blanket. Look forward to that as I will need proof readers and someone to test the knit squares for Hev. They all seem to be correct but I usually only knit socks so I might not catch anything.

Rheumatoid Arthritis And Just Plain Old Arthritis

At 37 you would think a person is too young to have arthritis.  If I didn’t have Lupus, RA, etc I would agree with you.  In November I posted about being diagnosed with Carpel Tunnel Syndrome.   I don’t think I mentioned this but the neurologist thought CTS was a ‘side effect’ of rheumatoid arthritis and/or plain old arthritis.  I told him I had an appointment to get a sonogram of my hands to see whats going on with them.  In December 2018 I got the sonogram done and got the results.  It required a visit to see the rheumatologist.  I knew they found something as he never sees me just to discuss results that produce nothing.  He told me I had the beginning of rheumatoid arthritis and arthritis – just plain old arthritis you would expect to see in and senior person.  This also brought news there was a medicine for me to try.  I was no longer just on pain management.  Orencia is the last medicine for me.  If it doesn’t work with at least my hands then its back to the world of pain management.  The only thing stopping me from getting Orencia is I can’t find any pharmacy willing to give a 37 year old woman the Shingles vaccine for the doctor to administer.  The pharmacies all say I need to be 50 to receive the vaccine.  I’m sure that is going to be a fin fight.  Once I get the vaccine or he lets me go without it I will get to inject myself once a week with Orencia.  Yay for shots.