Tag: Orencia

Things Need To Be Done!

I am a bit overwhelmed right now. I have many things to do. I have 6 book reviews to do which means I need to read 6 books. This is not normally a problem. This leads to another thing – photosensitivity. Yesterday I finally crashed. I slept around 20 hours yesterday because of the sun. In a previous blog post I discussed all that goes with my sun issue so i won’t repeat myself here. Then Robert broke my tablet last week. I had to order a new one from Dell. I got a Samsung Galaxy Tab A. yes i know it’s not the best but it suits my needs as I only really read on it. I had issues with NetGalley too. The issues with the book downloads are supposed to be fixed so when I can stay up longer then a few hours at a time and I have time I will retry to get the books to work so I can review them. As well as all that I stated Orencia last Tuesday. It has already started working. usually when meds start working right away they don’t last long. I’m hoping they do. I didn’t realize how much I stopped doing things (using my hands) until this past week. If my flare lasts the rest of the week I will have no choice to call the Rheumatologist and get steroids. Not exactly what I want to do. he may also think it was brought on by the Orencia & I may have to stop taking it. One good thing about this hellish week is I am on part 4 of the Arizona CAL – I was on part 2 last week. I will get caught up.

I will get everything caught up & going back to how I had it soonish. A week or two.

Rheumatoid Arthritis And Just Plain Old Arthritis

At 37 you would think a person is too young to have arthritis.  If I didn’t have Lupus, RA, etc I would agree with you.  In November I posted about being diagnosed with Carpel Tunnel Syndrome.   I don’t think I mentioned this but the neurologist thought CTS was a ‘side effect’ of rheumatoid arthritis and/or plain old arthritis.  I told him I had an appointment to get a sonogram of my hands to see whats going on with them.  In December 2018 I got the sonogram done and got the results.  It required a visit to see the rheumatologist.  I knew they found something as he never sees me just to discuss results that produce nothing.  He told me I had the beginning of rheumatoid arthritis and arthritis – just plain old arthritis you would expect to see in and senior person.  This also brought news there was a medicine for me to try.  I was no longer just on pain management.  Orencia is the last medicine for me.  If it doesn’t work with at least my hands then its back to the world of pain management.  The only thing stopping me from getting Orencia is I can’t find any pharmacy willing to give a 37 year old woman the Shingles vaccine for the doctor to administer.  The pharmacies all say I need to be 50 to receive the vaccine.  I’m sure that is going to be a fin fight.  Once I get the vaccine or he lets me go without it I will get to inject myself once a week with Orencia.  Yay for shots.